CIDP (2025)
(page
2/2)
(Chronic Inflammatory Demyelinating Polyneuropathy)
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July 3/2025
Lifelabs; MDS & diabetes quarterly bloodwork.
Update on my neck..
July 4/2025
West Coast Retina Consultants.
July 6/2025
Consult with the Rapid Access Pain Clinic about my lower
back pain.
As per my MRI from last December, I have compression in my
L4 and L5 vertebrae. I also suffer from random weakness in
my left leg. Apparently this is (at least partially) a result of
the spine compression.
The doctor believes this is a result of my leg amputation; I am
misaligned, and things are being pinched, affecting my left leg.
He will send his report to my GP, where him and I will have a
discussion on how to move forward with this.
July 9/2025
Follow up with GP on the back pain.
After a long talk, I will be moving forward with pain clinic (spinal
injection) as well as getting back to physiotherapy.
Hopefully the injection will mask the pain while physio helps
me strengthen the area.
And because this may be from my amputation, I will be talking to
my prosthetist to see what he has to say.
July 10/2025
Podiatrist.
July 14/2025
Picked up the corticosteroid for my back injection on Thursday.
July 15/2025
Hodgson Orthopedics.
Added some height (2mm), and brought my foot inward for a
tighter footprint.
My prosthetist is going to reach out to Queens Park to see if they
will consider taking me in for some physiotherapy. Fingers crossed.
July 17/2025
Rapid Access Pain Clinic.
First corticosteroid injection for my back pain. That was very unpleasant.
After the injection, I went home and layed down for a few hours.
When I got up, so much of the back pain was gone. Wow!
July 18/2025
Woke up to minimal back pain. Cool!
After breakfast I did some stretching & crunches. The back pain
has prevented me from doing this.
I find myself beeing very cautious, as I'm used to being in pain and things hurting when I move.
And to be clear, my lower back pain is minimized, but I still have all
the other pains from my CIDP and Diabetes. The lower back
pain was so bad that it took my attention away from the other pains.
July 23/2025
Just a random "freaky foot" picture.
July 23/2025
Pure Form Physio. These are the five exercises I was given, and will
see them again in three weeks.
July 24/2025
Podiatrist.
July 25/2025
Second corticosteroid injection in my back.
July 26/2025
My home physio equipment.
July 27/2025
I was at the store when I noticed this; must have bumped
a shelf or something.
Got home and cleaned it up.
July 28/2025
Time to get more height in my step.
July 30/2025
Jim Pattison Centre; Neurology. 18 month follow up with.
Found these at the dollar store; $5 each.
All my equipment.
July 31/2025
Hodgson Orthopedics. Now that I am a bit more active, I've
noticed a sloppy fitting socket. My liners are 30 months old
and the sleeve is 12 months old, so are overdue to be replaced.
The liners have to be ordered in, but I did walk out with a new,
more durable sleeve. And it came in black, which I like because
I've had grey for the past five years.
August 1/2025
West Coast Retina Consultants.
Picked up dinner. I carried this in my left hand, cane in the right
hand, and stepped off the curb.
August 2/2025
Third corticosteroid injection in my back. After updating the
doctor on the lack of T4, T5 pain, he did not give me the third
injention. From here I continue with my PT, and get back to my
GP if the pain returns.
A couple images of my new sleeve.
August 3/2025
Picked up a squat wedge. It makes doing an amputee squat so
much better.
August 5/2025
Jim Pattison Centre for IVIG (Privigen). Only four pokes.
August 5/2025
Jim Pattison Centre for IVIG (Privigen).
Post IVIG treat.
Since changing from getting IVIG every six weeks vs every four
weeks, I have been feeling a little off in weeks five and six.
This time, I was really off, which confirmed my thoughts that
I need to go back to four weeks. I reached out to my neurologist
today and await for his approval.
Got word from my prosthetist that Queens Park has accepted my
file and I am now on the waiting list. Yay!
August 7/2025
Follow up with surgeon on my neck. He needs to re-open things so
it will (hopefully) close and heal better.
Got a call from Queens Park. I go for physio there next week.
August 8/2025
Podiatrist.
August 13/2025
Pure Form Physio.
August 14/2025
Queens Park, physio.
August 15/2025
Queens Park, physio.
August 18/2025
Langley Hospital; follow up surgery on my neck..
August 21/2025
Queens Park, physio.
August 22/2025
Podiatrist.
August 26/2025
Hodgson Orthopedics. Get my new liners.
August 28/2025
Queens Park, physio.
August 29/2025
West Coast Retina Consultants.
September 4/2025
Queens Park, physio.
September 5/2025
Podiatrist.
September 8/2025
Pure Form Physio.
September 10/2025
Jim Pattison Centre for IVIG (Privigen).
Only one poke to get the IV in. I drank my usual amount of
water before hand, but also did a 15 minute walk on my treadmill.
Thinking that should get my veins popping. Will do it next time
to test my theory.
September 11/2025
Jim Pattison Centre for IVIG (Privigen).
My icy cold reward.
September 15/2025
Dentist; cleaning.
Well that was a waste of time. I am six months overdue for
my cleaning as I lost my extended coverage and have been waiting
to get on the new government program (CDCP). My dental office
new this, yet when I walk in for my appointment today, they
tell me they opted out of the program. Nobody had the common
sense to tell the patient this in one of our many talks about me waiting
to get on the program? Come on #SmilesUnlimited, you have to do
better! To bad, because they have been good to me over the years,
but I am now looking for a new dentist.
September 19/2025
Podiatrist.
September 25/2025
West Coast Retina Consultants.
Jim Pattison Centre; follow up with the hematologist.
My MDS bloodwork has been good for the past year; hemoglobin
and wbc are normal and iron is a little low. I will continue with my
quarterly bloodwork and my iron supplements, and talk to the
doctor in a year.
October 1/2025
LifeLabs; A1C & MDS bloodwork.
October 3/2025
Podiatrist. The toe is swollen and red. Time to step things up..
October 14/2025
A visit to my GP about my toe; getting a referral to Pattison
Centre for IV antibiotics.
October 15/2025
Jim Pattison Centre for IVIG (Privigen). Two pokes this time.
October 16/2025
Jim Pattison Centre for IVIG (Privigen).
Post IVIG treat.
Noticed this blood blister near the end of my infusion.
Chilling at home; slurpee (with protein), popcorn & some
TrailMater Off-Road recovery.
October 23/2025
West Coast Retina Consultants.
The blister is slowly going away.
October 27/2025
Home Health Care; #2 toe wound care.
October 31/2025
Podiatrist.
November 6/2025
The blister still slowly going away.
November 11/2025
Jim Pattison; IV antibiotics & home IV training.
November 12/2025
Jim Pattison Centre for IVIG (Privigen).
November 13/2025
Jim Pattison Centre for IVIG (Privigen).
The blister still slowly going away.
November 15/2025
The blister is finally gone.
November 19/2025
Checked in to Abbotsford Hospital for my #2 toe amputation..
November 25/2025
Discharged from hospital
November 28/2025
Home Health Care; toe #2 wound care.
December 1/2025
West Coast Retina Consultants.
Home Health Care for #2 toe wound care.
December 2/2025
Had some in the shell peanuts for a snack. First time trying
since having CIDP. No issues, but it was harder than before
having CIDP.
December 4/2025
Home Health Care for #2 toe wound care.
December 6/2025
Home Health Care for wound care.
December 8/2025
Home Health Care for wound care.
December 10/2025
Jim Pattison Centre for IVIG.
December 11/2025
Jim Pattison Centre for IVIG.
December 12/2025
Abbotford Hospital; remove toe #2 stitches.
December 16/2025
Jim Pattison Centre; Neurology.
December 30/2025
West Coast Retina Consultants.
January 1/2026
January 6/2026
LifeLabs; A1C & MDS bloodwork.
January 7/2026
Jim Pattison Centre for IVIG.
January 8/2026
Jim Pattison Centre for IVIG.
February 4/2026
Jim Pattison Centre for IVIG.
February 5/2026
Jim Pattison Centre for IVIG.
March 20/2026
West Coast Retina Consultants; IV Flourescein Angiography.
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If you have any comments, suggestions, or see any errors, please let me know..... cbradley@telus.net
Last updated on December 3/2025
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