CIDP (2025) (page 2/4)

(Chronic Inflammatory Demyelinating Polyneuropathy)

    




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May 6/2025

Westcoast Retina Consultants.




May 13/2025

    
Jim Pattison Centre for IVIG (Privigen).




May 14/2025


Jim Pattison Centre for IVIG (Privigen).



         
The bandage on my kneck fell off, so the nurse put a fresh one on
for me.




Post treatment treat.




May 15/2025

Podiatrist #4.

Jim Pattison Centre, Infectious Diseases. This appointment
was requested by my doctor back in January.




May 27/2025

Over the past month or so, I have noticed a slight increase in
my leg strength. This means better balance & walking in
the house with no cane, some times.




June 29/2025

Podiatrist.




June 5/2025


West Coast Retina Consultants.




June 6/2025

    
Doing some clean up around the house and came across a box
with some of my occupational therapy (OT) tools; putty, 3d
puzzle, paper thingy a patient in Wueens Park gave me, pencil
crayons and one of my many water containers.




June 12/2025

Podiatrist.




June 20/2025

In regards to my strength getting better; today I stopped by my
folks' place, and tried going up the three steps from the garage
using only one of the handrails. I did it! And when I left, I went
down the stairs, stopped, turned around and went back up
using one handrail again, just to show mom. It feels so good to
to see these improvements.

On that note, I've also used their front steps a few times, using
both handrails.

Overall, steps, stairs, curbs and uneven surfaces are getting easier
to navigate.




June 24/2025

    
Jim Pattison Centre for IVIG (Privigen).




June 25/2025

    
Jim Pattison Centre for IVIG (Privigen).




My session started in the hallway. Third time in a row. Discussed this
with the nurses; they are frustrated due to constant overbooking.
They gave me a survey to fill out, which I did.




My post IVIG treat; rootbeer/grape/rootbeer.




A few hours later I noticed this on my arm. It looked like my skin
was peeling. This is where my IV was leaking for about 30
minutes; the connection between the IV and tubing wasn't tight.
On my arm is dried IVIG and it just washed off.



Today was one of those days.....

No disabled parking at the hospital. Luckily I found a regular spot
that I could use.

Then, the app I use to pay for parking kept erroring. Took thirty
minutes for it to work.

And then, I start my IVIG session in the hallway due to overbooking.

And then, I had IVIG leak all over my arm.

And then, on the way home, I stopped at Staples to pick up
something, and no disabled parking, until I found a regular spot
that would work, and as I walked to the store, two disabled spots
were available.

And then I went home.




June 27/2025

Podiatrist.




June 28/2025

As I plug away on my CIDP recovery, don't foget about the
ulcer on toe #2 and a re-occuring neck cyst.




July 3/2025

Lifelabs; MDS & diabetes quarterly bloodwork.



Update on my neck..




July 4/2025


West Coast Retina Consultants.




July 6/2025

Consult with the Rapid Access Pain Clinic about my lower
back pain.

As per my MRI from last December, I have compression in my
L4 and L5 vertebrae. I also suffer from random weakness in
my left leg. Apparently this is (at least partially) a result of
the spine compression.

The doctor believes this is a result of my leg amputation; I am
misaligned, and things are being pinched, affecting my left leg.

He will send his report to my GP, where him and I will have a
discussion on how to move forward with this.




July 9/2025

Follow up with GP on the back pain.

After a long talk, I will be moving forward with pain clinic (spinal
injection) as well as getting back to physiotherapy.

Hopefully the injection will mask the pain while physio helps
me strengthen the area.

And because this may be from my amputation, I will be talking to
my prosthetist to see what he has to say.




July 10/2025

Podiatrist.




July 14/2025

         
Picked up the corticosteroid for my back injection on Thursday.




July 15/2025


Hodgson Orthopedics.

Added some height (2mm), and brought my foot inward for a
tighter footprint.




July 17/2025

         
Rapid Access Pain Clinic.
First corticosteroid injection for my back pain. That was very unpleasant.



After the injection, I went home and layed down for a few hours.
When I got up, so much of the back pain was gone. Wow!




July 18/2025

Woke up to minimal back pain. Cool!

After breakfast I did some stretching & crunches. The back pain
has prevented me from doing this.

I find myself beeing very cautious, as I'm used to being in pain and things hurting when I move.
And to be clear, my lower back pain is minimized, but I still have all
the other pains from my CIDP and Diabetes. The lower back
pain was so bad that it took my attention away from the other pains.




July 23/2025


Just a random "freaky foot" picture.




July 23/2025

    
Pure Form Physio. These are the five exercises I was given, and will
see them again in three weeks.





July 24/2025

Podiatrist.




July 25/2025

Second corticosteroid injection in my back.




July 26/2025

         
My home physio equipment.




July 27/2025


I was at the store when I noticed this; must have bumped
a shelf or something.




Got home and cleaned it up.




July 28/2025

    
Time to get more height in my step.




July 30/2025

Jim Pattison Centre; Neurology. 18 month follow up with.




Found these at the dollar store; $5 each.




All my equipment.




July 31/2025

    
Hodgson Orthopedics. Now that I am a bit more active, I've
noticed a sloppy fitting socket. My liners are 30 months old
and the sleeve is 12 months old, so are overdue to be replaced.
The liners have to be ordered in, but I did walk out with a new,
more durable sleeve. And it came in black, which I like because
I've had grey for the past five years.




August 1/2025

West Coast Retina Consultants.




August 2/2025

Third corticosteroid injection in my back.




August 5/2025

Jim Pattison Centre for IVIG.




August 5/2025

Jim Pattison Centre for IVIG.




August 7/2025

Follow up with surgeon on my neck.




August 8/2025

Podiatrist.




August 13/2025

Pure Form Physio.




September 25/2025

Jim Pattison Centre; follow up with the hematologist.




November ??/2025

Jim Pattison Centre; Neurology. 24 month follow up with.






Home Amputee Page CIDP Page

If you have any comments, suggestions, or see any errors, please let me know..... cbradley@telus.net

Last updated on July 31/2024

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