CIDP
(Chronic Inflammatory Demyelinating Polyneuropathy)
Chronic inflammatory demyelinating polyneuropathy (CIDP) is a
relapsing-remitting or progressive immune-mediated acquired
neuropathy classified as an autoimmune disorder. CIDP is
characterized by a slow and progressive course, with relapsing
symptoms and gradual worsening over a period of more than
eight weeks. CIDP is diagnosed based on clinical features and
neurological examination with the help of electrophysiological
studies and other supportive findings.
On the other hand, acute inflammatory demyelinating
polyneuropathy, also called Guillain-Barre syndrome (GBS),
is characterized by a monophasic course, with a clinical peak
within four weeks of disease onset.
May 2/2023
On May 2/2023, I checked into Langley Hospital.
Here is my CIDP journey.
| Me & CIDP: Fun Facts (April 30/2024) |
| - checked into hospital May 2, 2023 |
| - released from hospital September 22, 2023 |
| - spent a total of 20 weeks in three hospitals |
| - first 4 weeks I had cognitive dysfuntion |
| - first 4 weeks I had 80-90% paralysis |
| - 6 weeks to get some upper body movement |
| - 8 weeks to stand with aid |
| - 15 weeks to my first aided steps |
| - 16 weeks of using a ceiling lift to transfer me |
| - 17 weeks to be able to transfer on my own |
| - 18 weeks to be able to pee in the toilet & wipe my own ass |
| - 19 weeks to be able to walk without assistance (2-wheeled walked) |
| - 20 weeks to be able to go home |
| - 25 weeks to be able to walk with a 4-wheeled walker |
| - learning to walk and balance is hard |
| - learning to walk and balance with an RBKA & hip arthritis is harder |
| - learning to walk and balance with an RBKA & hip arthritis and partial left foot amputation is even harder |
| - constant lower back pain sucks |
| - constant fatigue sucks |
| - getting IVIG every 4 weeks (over 2 days, 3-4 hrs/day) sucks |
| - not knowing how your energy & strength will be each day sucks |
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| Home | Amputee Page | CIDP Page |
If you have any comments, suggestions, or see any errors, please let me know..... cbradley@telus.net
Last updated on November 5/2024
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