CIDP (2025)

(Chronic Inflammatory Demyelinating Polyneuropathy)

    



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January 1/2025





              
Starting the year out right.



January 3/2025


Home Health Care.




My right foot has rotated again, more than the last time, and
much quicker. The only difference this time is that it hasn't
clicked. Off to my prosthetist, again.




Three and a half weeks later and the two dots from my last
IVIG are pretty muvh gone.



         
The post IVIG dots; Dec 12, Dec 28 & Jan 3.



January 4/2025

    
Goint to bed last night, I noticed the silicone heal sleeve I just
got was broken (my sock was holding it in place) after wearing
it twice. It came in a pack of 4, so I put on a new one today.
Hopefully the others last a bit longer.



Mom drove me to my place so I could pick up a few things. One
of those things was my rollator; it is so much better than the
2-wheeled walker.



January 6/2025

    
Jim Pattison Centre for IVIG (Privigen).



January 7/2025


Another heal sleeve bites the dust. This one lastest three days.




Jim Pattison Centre for IVIG (Privigen).




Treat time. Forgot to take a picture, but the Coke slurpee hit
the spot.



         
Because I had IVIG today, no Home Health Care. That means I
had to change the bandage myself.



January 8/2025

    
Hodgson Orthopedic; foot adjustment. Turns out the tube clamp
he put on two visits ago was faulty and wasn't clamping hard
enough. He swapped it for a titanium clamp that should solve the
problem.




Back at home with a fixed left leg.




On the way home, we stopped at GDK (German Donar Kebab)
and grabbed some lunch to go. It was delicious.



January 10/2025

Just found out that an old friend has pancreatic cancer with
little time left. Sad day.




Home Health Care.



January 11/2025

         
The new tube clamp; my first part from Ossur.




Shorts day.



January 13/2025

Follow up with vascular surgeon. He was happy with the healing
(been 3 weeks); I can start putting weight on it, so no more
off-loading shoe and no need for bandages. The stitches can
come out on Friday, which will require a bandage for a day or so
as there may be some bleeding. At this point he said I no longer
need to go to Home Health Care, so I will havd that conversation
with them when I see them, and see what they say.




Back home, testing out my sneakers.



January 14/2025


Home Health Care. They agreed with my surgeon's plans, and
will re-evaluate on Friday when the stitches come out. They
may want to see me for another week or so, which is fine with me.




I get to dab this on the stitch line once a day.



January 17/2025


Westcoast Retina Consultants. Trying a different steroid in
my right eye; it is not doing as well as the left eye.




Stopped by my doctors office to get this. Was talking to him
yesterday about a referal to the Diabetes Clinic; with me losing
another toe, and my sugars are fine, I want to make sure I am
not missing something. He recommended continuous
glucose monitoring just to be sure.




Sensor installed.



Drove for the first time since the amputation. Will be going home
on Saturday.



January 17/2025

LifeLabs; diabetes & MDS bloodwork.



    
Home Health Care; 7 stitches removed.



January 19/2025

Moved back home; it feels so good to be back at my place. A big
thanks to my mom and dad for (once again) taking care of me
so I can focus on my healing. It makes life just a bit easier



January 20/2025

    
Doing my daily cleaning, and the big scab fell off.



January 21/2025

Home Health Care. Everything looks good so they don't want
to see me anymore. I just have to do my daily cleaning for
another week or so.



January 22/2025

    
Home cleaning.



January 24/2025

    
Home cleaning.



January 28/2025

    
Home cleaning.



January 29/2025


Visiting my furry friend.



February 1/2025

    
Home cleaning.



February 4/2025

    
Home cleaning.



February 5/2025

LifeLabs. Bloodwork for iron.



February 6/2025

    
Foot Solutions. They got some new models of shoes in, so I went
to see what they had. Came home with these New Balance 1540's.

These shoes are super wide and have a large toe box. My remaining
three toes (#2, 3 & 4) are hammer-toed, with #2 being the
worse. It is showing signs of rubbing on the shoe, so hopefully
these shoes prevent or minimize that. I am now putting a
corn pad and tape on the area to (hopefully) let it heal.




Wearing them in the house for the first time.




Put some white rings on the left shoe so I can clip on my AFO.



February 8/2025


Monitoring toe #2.



February 8/2025


Monitoring toe #2.



February 14/2025


Westcoast Retina Consultants.



February 18/2025

    
Jim Pattison Centre for IVIG (Privigen).



February 19/2025


Jim Pattison Centre for IVIG (Privigen).



February 21/2025

Podiatrist. Follow up on toe #2.




The podiatrist told me to try some lambswool. You wrap it
around the toe to prevent any rubbing. I found some at BC Mediquip.



February 22/2025


Visiting an old friend and got to take her scooter for a test drive.



February 23/2025


Things appear to be getting better.



March 7/2025

    
March 7/2025


See my GP about the ulcer on my left #2 toe. He gave me
paperwork for bloodwork and an x-ray, and wants to see me
in a week

This ulcer started about 4 weeks ago. I clean it daily and put
idasorb on it. I then cover it with the lambswool, or I made a
gizmo to cup the toe and protect the top of the toe. I am
suspicious of my sock playing a roll in this repeated problem.



March 10/2025

Lifelabs; bloodwork for toe.

Valley Medical Imaging; x-ray on toe.



March 13/2025

Westcoast Retina Consultants.



April 1/2025

         
Jim Pattison Centre for IVIG (Privigen).



April 2/2025

    
The IV came out , so 3 pokes later I have a new one




Today's post IVIG treat.



April 5/2025


I went up this curb with no rail, and was super sketchy. I had
my cane, and used the sign to assist (held it with one hand and
used the base as a step). But when the Chicko Chicken dinner
you ordered is at the top of said step, you just make things
happen. Coming down was just as sketchy, but I survived
and had a great dinner.



April 10/2025

Westcoast Retina Consultants.



April 11/2025

Lifelabs; MDS & diabetes quarterly bloodwork.



April 15/2025

Jim Pattison Centre; Neurology. 15 month follow up with my
neurologist.



April 21/2025

Hodgson Orthopedic Group. Follow up on my orthotic andbr> discuss getting back into an AFO.br>


May 6/2025

Westcoast Retina Consultants.



May 13/2025

Jim Pattison Centre for IVIG.



May 14/2025

Jim Pattison Centre for IVIG.



June 24/2025

Jim Pattison Centre for IVIG.



June 25/2025

Jim Pattison Centre for IVIG.



July 30/2025

Jim Pattison Centre; Neurology. 18 month follow up with my
neurologist.



August 5/2025

Jim Pattison Centre for IVIG.



August 6/2025

Jim Pattison Centre for IVIG.
Home Amputee Page CIDP Page

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Last updated on April 15/2025

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